Cycle Spins??

The last few months, Joshua been in and out the OR getting new G-J tubes and here we sit for the 5th time waiting for the call to go back! This time been over a week and we are facing dehydration. Suddenly "Monday morning", I saw Joshua jerking *twitching* and blinking his eyes real hard and deep. Was it a seizure? Have not see him do it again,but we are going to a neuro and ruling it out.
My heading is spinning constanly between one child to the next. I want to get off the cycle and mabey try a gentle cycle?Really..enjoy life and not worry when we have to be here or there or making appts for this or that? Do we have enough meds today or one more day?

A week in Disney would be so nice.... beach.... heck even it at friends and getting relax time and swim time.

One day at a time.