Well here we sit.. another day same story ... Joshua G-J tube has popped once again. My body is tired and weary... then I think of my poor baby.For the last 8months we have had 9-10 replaced. WHY do they keep popping??? No idea? Only God has that answer and not shared the light with me yet. He stomach is constanly bloated and bloated and then POP goes the tube... and taking everything I got to keep it in.. tape and tape and tape.
I look back over the years.. how many time we plan something only to be detoured on another path! To path the cross of another person to preach my story. So many folks think I should write a book... since it already a open book. I love to tell the good and bad.. To let folks know my kids are KIDS.. just like yours. They are slow to take it in and process it all.. and slow to get it back out. One talks with her mouth.. the other with his hand.. the other with gesture and attiude!
Is Life going as you plan it? Has God intervene once again? Rather it good or bad!!!
Monday, August 28, 2006
Thursday, August 24, 2006
Thursday....
Just wanted to share my toughts today. I am really tired and being a mom to 3 kids all with medical and special challenges can take it toll on you. Well lets say it has on ME!
Courtney had a rough go with dancing and was more less kicked out. The teacher is not willing to work with her. Took the side of another girl and there mouths. Guess have to say this all was a discrimination case. Since it a small town. not worth the fight.
I called her dance studio from last year and she was all ready for Courtney to come back. She knew I left for better future.. only to find out I really need to take it one day at a time!!
So back to dancing on Thursday for her.. and oh.. horse back riding on Mondays.
Dayton will be going to school hopfully in the next week... ugh.. he driving me insane wanting to 'play' ALL day... I can't keep going and going... last I check.. I did not run off batteries.
Over all he is being a good kid!
Joshua.. well well.. loves school .... and I could easily get used to him at school... but not ready for that my self. Hopeing he will talk and learnt o walk being in this class more.
That my day today!
Courtney had a rough go with dancing and was more less kicked out. The teacher is not willing to work with her. Took the side of another girl and there mouths. Guess have to say this all was a discrimination case. Since it a small town. not worth the fight.
I called her dance studio from last year and she was all ready for Courtney to come back. She knew I left for better future.. only to find out I really need to take it one day at a time!!
So back to dancing on Thursday for her.. and oh.. horse back riding on Mondays.
Dayton will be going to school hopfully in the next week... ugh.. he driving me insane wanting to 'play' ALL day... I can't keep going and going... last I check.. I did not run off batteries.
Over all he is being a good kid!
Joshua.. well well.. loves school .... and I could easily get used to him at school... but not ready for that my self. Hopeing he will talk and learnt o walk being in this class more.
That my day today!
Sunday, August 20, 2006
Dayton and school...
Dayton teacher and I have had several round and round bouts. She is a smoker and lingers on her clothes and ect. When she was student teacher last year Dayton was sick one week after she arrived... and week after she was gone.. he cleared up. Our favorite teacher of all time has moved on and became Joshua teacher in the younger level. The student teacher graduated and became Dayton's NEW teacher. The first week of school.. they all could not believe how well behaved he was. This is on no meds. By that thursday Dayton started getting sick.. well Friday night.. he had a low grade fever.Off to Drs on Sat... massive ear infection,sinus/allergy infection. Lovely... So RX and steriods and swap nasal spray again. Of course Dayton giving the school hell due to steriods. Nothing I can do to fix it.
On Friday... the teacher loaded him in the van and ask if Dayton on was meds? I said RX and steriods. She said,"no, he on any meds for behavior". Again.. I said NO, he is on steriods and causes a reaction to him. Nothing would work or help. She started at it again... I gave up. Then she made remark about picking Dayton up at 2:30 instead of 3:00.. I said NO.. I spoke with the princple and the special ed director and all worked out for me to pick up at 3:00 since ALL kids get OUT of school at 2:50! She again.. disagreed that they got out at 2:35.... UGH..
At this point... I call Rusty and talk with him.. and we finish the discussion at home friday night. Dayton will not return to school. I am going to withdrawn him and wait see what they plan to do. We have spoke mabey moving him to 3rd grade. Praying this is the right decison. For now Dayton will be home school till further notice. Plus.. he now has a viral infection.
Can't win for loosing.
On Friday... the teacher loaded him in the van and ask if Dayton on was meds? I said RX and steriods. She said,"no, he on any meds for behavior". Again.. I said NO, he is on steriods and causes a reaction to him. Nothing would work or help. She started at it again... I gave up. Then she made remark about picking Dayton up at 2:30 instead of 3:00.. I said NO.. I spoke with the princple and the special ed director and all worked out for me to pick up at 3:00 since ALL kids get OUT of school at 2:50! She again.. disagreed that they got out at 2:35.... UGH..
At this point... I call Rusty and talk with him.. and we finish the discussion at home friday night. Dayton will not return to school. I am going to withdrawn him and wait see what they plan to do. We have spoke mabey moving him to 3rd grade. Praying this is the right decison. For now Dayton will be home school till further notice. Plus.. he now has a viral infection.
Can't win for loosing.
The picture that was chosen!
Here the picture that was chosen for New York Buddy walk on Times Square Video!
We are so still hoping to go but will not know for sure till another week away. It would be very nice to go but in case we don't make it. I know we can get a video.
Hopfully some friends who plan to go will take pictures for us!!
Wednesday, August 16, 2006
Tuesday, August 15, 2006
School
Well school been in session one week. Courtney loves it.. she is learning names and learning she not Ms Popular this yr YET!!! She always outgoing and knows everyone in a few days.. but this year a different ball game for some reason. Kids are cruel sometimes and some have the heart of gold! If we can take the heart of gold and spread them all over how love would be so pure!
Dayton...one week and already SICK! Has major sinus and allergies going on. We have a new teacher for grade k-2nd special ed. She was a student teacher at the end of last year. Also during the time she was there.. Dayton was sick massive with sinus and allergies. Sadly I knew it would come down to this. The teacher we have is a smoker and it is bad enough you can smell it on her clothes all day! Even though she does not smoke at school that we are aware of,it can be smelled. Legal there nothing we can do.. it all moral and asking someone to quit for one child health will not happen. Remind you.. Joshua should be going to her next fall. After talking with princple and director over SPED,our next choice is mabey move him to another school. Our town so small that we only have one SPED class at each school. Granted he only would go for one year and have to change schools again. Sadly Dayton does not adjust to changes well. So we are stuck for this min. I want to make the best decsion for Dayton not everyone else. My wish be the teacher would quit smoking.. but not going to happen.
Joshua will start with a PEECH program on WED. He will go two days a week for 3hrs a day. Sadly this means he must grow and change and leave mom. I am having a very hard time cutting the cord. He is my baby.. and we been through ALOT together and don't like spending time away from him. He and I are like two peas and a pod together. I know I am scared that I will miss something in the line of 'first' step. I can't let go of that feeling!
I will post pictures later.. for now.. Joshua waiting for me to play with him:)
Dayton...one week and already SICK! Has major sinus and allergies going on. We have a new teacher for grade k-2nd special ed. She was a student teacher at the end of last year. Also during the time she was there.. Dayton was sick massive with sinus and allergies. Sadly I knew it would come down to this. The teacher we have is a smoker and it is bad enough you can smell it on her clothes all day! Even though she does not smoke at school that we are aware of,it can be smelled. Legal there nothing we can do.. it all moral and asking someone to quit for one child health will not happen. Remind you.. Joshua should be going to her next fall. After talking with princple and director over SPED,our next choice is mabey move him to another school. Our town so small that we only have one SPED class at each school. Granted he only would go for one year and have to change schools again. Sadly Dayton does not adjust to changes well. So we are stuck for this min. I want to make the best decsion for Dayton not everyone else. My wish be the teacher would quit smoking.. but not going to happen.
Joshua will start with a PEECH program on WED. He will go two days a week for 3hrs a day. Sadly this means he must grow and change and leave mom. I am having a very hard time cutting the cord. He is my baby.. and we been through ALOT together and don't like spending time away from him. He and I are like two peas and a pod together. I know I am scared that I will miss something in the line of 'first' step. I can't let go of that feeling!
I will post pictures later.. for now.. Joshua waiting for me to play with him:)
Going to Time Sqaure
Well one or all three kids where picked to be on the NDSS Time Square Video to repensent Down Syndrome! How cool is that.. after 3 yrs of trying finally. I was hoping to know which picture was picked but I am so excited.. had to post. I will post picture later when I know.
Not sure yet if we are going to NY... seems so far away.. and so costy. Really hoping mabey that our local community may help us. The kids peds are thrilled for us! Mabey this is a jumpstart we need:) Thanks Americus for being there for us..regardless we are not fond of the town due to medical reasons and even now school issues. That a whole nother post!
Not sure yet if we are going to NY... seems so far away.. and so costy. Really hoping mabey that our local community may help us. The kids peds are thrilled for us! Mabey this is a jumpstart we need:) Thanks Americus for being there for us..regardless we are not fond of the town due to medical reasons and even now school issues. That a whole nother post!
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