February, come and gone....

Once again.. another month has past me by. Joshua,had to have the g-j tube replaced twice and means he has to go to OR both times... not included when he went to have the biospy and the it came back neagtive!!! YEA!!! Now why he have bloated issues and very foul poop. We go back to GI end of March. More questions and questions. He just not feeling to weel lately,can't put my finger on it... time will tell. Dayton been sick.. with nasty ear infections (both ears) 10days of meds, nothing..we got 2 shots of rocephine and now dealing with the diaraeha. He woke this morning with thick green snotty nose and sneezing left and right. Hmmm another round of shots? Mabey just another round of meds? Courtney did well with her scope with the ENT in the OR. Good and bad news.. Good.. everything looks great!!! Bad... there nothing they can see to cause her to aspirate,meaning the g-tube is most likely for life. We go back also end of March to GI, see what the next step. I am sure repeat in swallow study. Go on meds to supress the hunger. My heart breaks for her and eating!